As parents we were reassured to discover this network set up by Pete and Joel as our son felt very isolated as a young kidney transplant recipient in the adult public hospital system.
We could reassure our son that he was not alone and that when he needs to reach out and find support there is a meeting place online to go to with wonderful people that understand his experience.
There is so much misinformation and online chat forums with sensational information on the internet regarding organ donation and transplant that young donors and recipients and families should be wary of.
As parents of a young recipient (20) and his brother, a young adult donor (27), we have some understanding now of the process of related living donor kidney transplant. It is a wonderful and compassionate gift from, in our family’s case, brother to brother, and offers so much quality of life to the recipient. It is a miracle to be celebrated!
It’s also a very stressful time, with much anxiety for donor, recipient and families trying to support each other and be strong and positive. It is a remarkable feat really by all the dedicated surgeons and transplant teams involved but we do believe more attention should be given to support young donors and recipients from a psychological perspective in the transplant process. Which makes a site like this Transplant Network and the support work Pete and other young ambassadors are offering in hospital transplant wards a very positive step in the right direction.
Please don’t hesitate to contact us if you are going through a transplant experience with your young adult son or daughter and need to speak to parents in a similar situation. We would be more than happy to have a chat and offer any support we can.